We got to try out the children’s hospital in Orlando last Saturday night (15thof June), the night before we left on our cruise. Keegan’s tongue had had a little red mark on it the few weeks prior to us leaving (like an inflamed tastebud – as though maybe he had burned it or cut it on sharp chip or something), but the few days before us leaving it seemed to be getting better. After arriving in FL it started going downhill again and wound up splitting open. It bled and bled and bled (for about 90 minutes) on Saturday evening. I talked with a friend at our dermatologist’s office and then the P.A. who was on call. She said that given our circumstances we should head to the E.R.
So… By then, the older three boys were asleep (it was 11p.m.), so we left a note for them and the three of us drove to Orlando to visit Nemours Children’s Hospital. This place was rather disgusting. The sheet on the hospital bed hadn’t been changed since the previous patient(s?); it was oily and there was a snot-like substance on it. The paramedic who took us into the room said it might be tape but it looked way too alive. There were crunched crackers and M & Ms on the floor and the floor itself looked like it had not been cleaned for quite some time. The furniture looked decades old. It felt like we’d already moved on to an underdeveloped country! At least the doctor was very very nice. Unfortunately, she was the only physician working that evening, so our full Nemours experience from door to door was about five hours. The three of us climbed into bed at about 4a.m. ready to wake up at 8a.m. to get ready and leave for the port.
Sadly, the silver nitrate (which Keegan called “spicy”) that the doctor had put on Keegan’s tongue to stop the bleeding did not do the trick and as we were scrambling around packing and loading suitcases into our rental car Sunday morning, we were also trying to stop the bleeding and figure out how to do a FaceTime follow-up call with a physician at Nemours.
Everything worked out in the end (i.e. we boarded the ship!), although he did have a couple more bleeding episodes during the day. The doctor we FaceTimed with was also really great and we have the plan to keep an eye on it, control the bleeding, and load him up with ice cream because ice cream is soft and cold (cheers from Keegan!). If it continues, we will have him seen in the UK for maybe laser treatment or cauterization. Both doctors seemed confident that there is not a serious underlying issue and both said that the amount it will bleed, although it really seems like a lot coming from such a small area, is not a reason for concern. Thank you, God! Please pray for the bleeding to stay minimal and for a clean hospital in our future to get this resolved!
Praying for Keegan. How he is now?
Thanks Holly! Keegan had one more bleeding incident early on in the cruise, but has been pretty much fine for a few days now. He still has a large lumpy thing on his tongue, so we’re still monitoring to see if we need to have it dealt with in the UK, but hoping for the best!
Thank you Holly!
He has been better for about a week now so we are hopeful that it is gone for good!!
Oh goodness! I am so sorry for your experience there!! How is Keegan doing now? Oh and we all miss you!!!
Thank you Nicole!! We miss you guys too!!
Keegan is all better — yay! Thank you for asking. Keeping an eye on it but hopefully that is behind us now. We communicated w/ our dermatologist back in Redmond and he thinks it was trauma to the tongue (something sharp [tortilla chip?]; spicy; acidic; etc.?)… and it should be better now. Whew!
Praying for Keegan, and for you! That would be so worrying at the start of such a long journey. I’m glad the doctor doesn’t seem to be alarmed.
Thank you Mona!!
Hi there you guys! I have been enjoying your trip through your blog and just noticed this post about Keegan. How scary for all of you. Is he better now? We’re praying for healing and for a lot of ice cream in Keegan’s future but only because he’s a good boy. Not because of a tongue issue. Stay healthy all of you. We love and miss you dearly.
We miss you guys too, Jody!!!
Keegan has had a couple bumps since on his tongue–it is so strange!
Our current guess is that maybe it has to do with eating citrus. Backing away from citrus now to see if that helps….